Submitted by Beth Macy on Thu, 03/13/2008 - 21:56.
Beth MacyWhat aging challenges are you facing? Are the stories of Linda and Tommy — or Bill and Kathy — similar to your own?
For the past several months, photographer Josh Meltzer and I have listened to the concerns of area aging experts, health-care providers and caregivers.
Now, we want to hear from you. What do you think are the most pressing needs of seniors in the region? Maybe you have tips for people in need. Maybe you’d like to volunteer to help a senior. Or maybe you just need a willing ear.
Finally, is there anything you’d like to see on this site that isn’t yet here? Let me know.
As you explore the site, come back here to the “Talk” section to share your thoughts with me and other readers.
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Nursing home violations
Thank you Beth, for today’s article about nursing home violations. My mother's facility apparently passed some kind of inspection; I know this because I saw a computer generated banner congratulating the staff for passing standards. However, they don't pass my standards of lowered expectations.
I believe your front page article is perhaps the best way this newspaper can serve the elderly in this area, by keeping the pressure on "for profit nursing homes". Because these facilities are just 'A JOB" OR "A PAY CHECK" for so many of the accompanying staff, there are no real goals of resident's quality of care. Soulless institution is a more apt description of her home.
I would encourage all families to be more proactive by simply visiting frequently. The benefits are enormous. Become familiar with the staff, schedules for meals, medications, baths, housekeeping, and be an advocate for your loved one. It's a steep learning curve but you will never be sorry that you put forth this effort.
Thank you for being a "A Willing Ear"
Eldery drivers
This s my first ever venture into the "blogosphere" but this series is so important and this is a really rough week; I need to vent. My dear, independent mother is 86, almost 87. She still lives alone in her own home so I must remain anonymous for her protection. I am her 57 yr old daughter and I work full time Mon thru Fri, 8:30-5:00-the times when daily chores and excursions are done. Mom is slowly losing her mind to dementia - still a mild case but enough for concern; she doesn't see it that way - in her mind, she's just getting old. Her driver's license was suspended effective yesterday due to information sent to DMV. Mom's heart is broken over this-she refuses (or is unable) to acknowledge that it's for her own safety as well as for others. While she hasn't had an accident or harmed anyone, it was only a matter of time. She is very angry and is blaming me for everything. Due to her rage over this, my heart is breaking too because it is now that I must bear the role of parent and she is the child; due to her dementia our relationship is not what is has been for so many years-the mom I knew growing up no longer exists. There are so many issues I could address but for now I want to simply say that no family member should have to bear the responsibility of telling a parent they should no longer drive. There should be a law: EVERYBODY'S driver's license automatically expires on their 85th birthay. If one feels they are able to continue driving, then prior to the expiration, must submit vision and medical reports to DMV for review as well as pass an on-the road assessment. Kid's have to prove their worthiness to drive; elderly should have to do the same. Knowing that the deadline is approaching forces plans to be made, no exceptions. Thanks for the space to vent. Respectfully, Barbara in Roanoke.
Re- Elderly drivers
Thank you, Barbara, for sharing this moving story. I know that there are doctors who can and will give Mom the "bad news" — i.e. take her keys away and forbid her from driving. Your idea about about the 85th birthday is an interesting one; of course, we all know those exceptions: 90 year olds who are still fit to be on the road. But I think your idea has great merit. Do you know if any states have attempted anything like it?
Elderly drivers
Thank you for your comments. I have done just a small amount of searching and there are states that have imposed some "restrictions" - renewals every yr or two, no renewals by mail, etc but I haven't found anything so far with much to it - just a few things to make it look like the issue has been addressed. The exceptons (be they 90 or 100) can still get a license - they just have to prove they are able to drive responsibly by submitting to a road test, vision test, medical assessment - knowing that a deadline is approaching sets the ball in motion. If these requirements are too much trouble for the individual, then they no longer drive. The situation with my mom has not been so simple as taking the keys. I am bombarded daily with numberous phone calls from Mom - she is literally grieving over this. She doesn't care that she no longer has a license; she wants to drive and she demands her keys. I might also add that when our DMV suspends a license, the individual is supposed to turn it in and get a photo ID. Right - I don't think they want me bringing in a totally irate/irrational 86 year old to the DMV - security would probably have her arrested i/when she makes a scene. Just let me take the license in-have them print "suspended" in red letters and let her keep it as her ID. As my venture into elderly care progresses with my mom I'm sure I'll have more stories to tell. Thank you for allowing me to do so.
Dealing with Aging Parents
7 1/2 years ago we got the call that we all dread, my mother-in-law had suffered a serious stroke, while we were at the hospital in Lexington, I received a call from Florida that my father had also suffered a stroke that morning. Talk about overwhelming! I drove to FL to help with my father, while my husband helped care for his mother. Both parents went to rehab and are now home and being cared for by family. I don't think that there is anything that can prepare you for something like this. A year and a half ago we moved my parents here to Buena Vista, so that we could help care for my father. My husband and I have both taken early retirement from the school system and while this is not what we had planned on doing during our retirement, we feel that this is what needs to be done. Unfortuneately, in the small Buena Vista/Lexington/Rockbridge County area the options for assistance are not as great as Roanoke area. Sometimes it can get really discouraging and we all get tired, but it helps to know that we are not alone. The article that was in your newspaper helps others to know and hopefully understand some of the decisions that we make.
Tania Wheeler, Buena Vista, VA
To Tania Wheeler:
I would love to talk to you more about your situation. I think you might be able to help me with a subsequent story in the series.
Meanwhile, thanks for sharing your moving story here.
Can you e-mail me directly at beth.macy@roanoke.com so I'll be able to get in touch?
Take care - Beth
Age of Uncertainty Articles
Of course, I already know you are a wonderful writer and I always read anything with your byline. Saturday, 3/15/08 was my 28th Wedding Anniversary with the best husband that ever breathed and I know that like Mrs. Rhodes, I would find the strength and do what needed to be done for as long as I needed to do it and disregard others concern or opinions. Love is in the eye of the beholder and sadly even when one side is unresponsive the other just picks up the slack because of what once was. Mrs. Rhodes is indeed a role model, an Angel among us and a special individual on many levels and I thank you for introducing us to her and for bringing light to yet another area where our "health care system" is failing us. I hope your touching and honest portrayal and what must be the subsequent outpouring of support for her will further validate her decision and give her the strength she will surely need to face the future. Your empathy and intelligence shine through the article as always and you help us all to understand and hopefully ponder how to best "do something". A fan, Sandi Saunders - Hardy VA
Welcome to this site; talk to me
I’m eager to read your feedback on our premiere of the series: What do see as being the regional gaps in caring for our elderly? Do you have ideas for future stories?
Please use this “Talk” feature as a way to share your thoughts. I hope you’ll also enjoy viewing and listening to the many additional stories here on our Web site, from the videos and audio stories (under the “Galleries” tab) to our online database for senior resources and assessment tools (both under the “Interactives” tab).
If you're having trouble using this site, let me know: beth.macy@roanoke.com.
And stay tuned for more stories April 20 and 21, when we delve into the issue of home care for seniors.
Thanks for reading!
Beth
Thank you
Thank you Beth Macy and thank you to the people who generously and bravely shared their stories.
We are raising a seriously disabled grandchild and have many of the same issues to overcome as those caring for the elderly.Like them we too had a tough time finding anyone who knew where we could turn to for help.In truth there is an incredible amount of outdated and just plain incorrect information that often adds to the frustration.When you do find a source often times "budget cuts" have wiped out client services and you wonder why bother to have an agency that is there in name only.
Kudos to all of you wonderful people-you are angels on earth.
Kis folks
Incredibly moving article
I just turned 25 yesterday and have been reading the Roanoke Times for years, but this was the first article that touched me so deeply that I had to express my opinion on it. The title "Age of Uncertainty" certainly pertains to me here in the past 14 months. During that time I have been the primary caregiver for my mom. In January of last year, she was transported to CRMH from Carilion Franklin Memorial Hospital after the nursing staff at CFMH accidentally overdosed her on morphine. My mom spent a couple of weeks in the ICU at CRMH and nine of those days she was on a respirator. My mom went from being full of life and joy to being relegated to a nearly lifeless body lying in a hospital bed. Once she came off of the respirator and was moved from ICU to the step-down unit, she proceeded to catch all kinds of infections due to her weakened state, including MRSA.
She came home in May of 2007, after nearly four months away from home. We couldn't afford a private duty nurse for her, but there was never any question that I would become her caregiver; she is my mom after all and aside from that my dad had to work to support the family and my brother, well he couldn't handle it. I went on FMLA from my job, but lost my job not six weeks later despite the fact that I was on FMLA because of a technicality that really left me scratching my head but in the long run it turned out to be for the best. For nine months I've been unemployed but have basically had a full-time job of caring for my mom. She has had a couple of setbacks that have prevented me from returning to work. Being a caregiver is not a position that I saw myself in a few years back, and I especially didn't expect that I'd be acting as caregiver for my own mother.
As a child, you look at your parents and you think that they are invincible and that nothing, including illness, can touch them. When that fantasy is shattered, it's a jolting reality. Being a caregiver is the most stressful, frustrating thing I've ever had to do but it's also made me stronger and it has further cemented the relationship that I have with my mom. I love her dearly with all of my heart and can't imagine having someone else come in to do what I have done so in that respect I certainly empathize with Linda Rhodes. I empathize with her on many, many levels. I understand her frustration, her fears, her inner battles. She is an incredibly strong woman who should continue to listen to her heart and do what she feels is right. Please pass on to her that I commend her for what she is doing and for her to keep her head up. My mom is in much better health than she was several months ago, and I have no regrets about any of the sacrifices I made because she would do the same thing for me.
The article that you have written should be a wake up call to many families and should open up the dialogue about this subject, especially as we face a growing population of the elderly. It was our parents and their parents who helped build the world that we now live in, and we should do everything we can do help them in the twilight of their life. My mom is only 48 years old and my dad is 55 and I know that I will continue to be there for them as long as I have breath in my body, because they raised me to be who I am today and I love them. I'm sorry this is so long, but I wanted to share my story and commend you on a beautiful article.