Now 29, the Moneta man has moved on, and is doing all he can to raise awareness of the disease.
“As long as I can talk and walk, I’m going to do what I can,” Chedester said.
That will include a trip to Capitol Hill on Feb. 27, when Chedester and other members of Parkinson’s Action Network will lobby members of Congress for more funding for research to find a cure for Parkinson’s, a disorder of the brain that leads to tremors and difficulty with walking, movement, and coordination.
Last year, Chedester published a book, “Shakin’ Not Stirred (finding perseverance through Parkinson’s)” that outlined his long battle of alcohol and depression after first learning that he possibly had Parkinson’s.
He also started his own non-profit group to help raise money for his cause.
“This will be a new and exciting experience for me,” Chedester said of his upcoming trip to Washington D.C.. “I’ve never been in a situation before where my voice was this important and impactful for so many people.”
“Over 1 million people in the U.S. battle Parkinson’s disease every day, but only a handful of those are anywhere near my age. This disease continues to have an effect on people’s lives, and it needs to stop.”